Quality of Life, Quality of Care, and Patient Satisfaction: Perceptions of Patients Undergoing Outpatient Autologous Stem Cell Transplantation

Lisa Schulmeister

Kimberly Quiett

Kelly Mayer

ONF 2005, 32(1), 57-67. DOI: 10.1188/05.ONF.57-67

Purpose/Objectives: To further expand the limited body of knowledge of the perceptions of quality of life (QOL), quality of care, and patient satisfaction among patients who receive high-dose chemotherapy with an autologous stem cell transplant (ASCT) on an outpatient basis.

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    Acorn, S., & Barnett, J. (1999). Patient satisfaction. Issues in measurement. Canadian Nurse, 95(6), 33-36.

    Avis, M., Bond, M., & Arthur, A. (1995). Satisfying solutions? A review of some unresolved issues in the measurement of patient satisfaction. Journal of Advanced Nursing, 22, 316-322.

    Avis, M., Bond, M., & Arthur, A. (1997). Questioning patient satisfaction: An empirical investigation in two outpatient clinics. Social Science and Medicine, 44, 85-92.

    Beck, C.T. (1994). Reliability and validity issues in phenomenological research. Western Journal of Nursing Research, 16, 254-267.

    Bond, S., & Thomas, L. (1992). Measuring patients' satisfaction with nursing care. Journal of Advanced Nursing, 17, 52-63.

    Bredart, A., Razavi, D., Robertson, C., Brignone, S., Fonzo, D., Petit, J.Y., et al. (2002). Timing of patient satisfaction assessment: Effect on questionnaire acceptability, completeness of data, reliability and variability of scores. Patient Education and Counseling, 46, 131-136.

    Bredart, A., Razavi, D., Robertson, C., Didier, F., Scaffidi, E., & de Haes, J.C. (1999). A comprehensive assessment of satisfaction with care: Preliminary psychometric analysis in an oncology institute in Italy. Annals of Oncology, 10, 839-846.

    Bredart, A., Razavi, D., Robertson, C., Didier, F., Scaffidi, E., Fonzo, D., et al. (2001). Assessment of quality of care in an oncology institute using information on patients' satisfaction. Oncology, 61, 120-128.

    Bushy, A. (1995). Ethnocultural sensitivity and measurement of consumer satisfaction. Journal of Nursing Care Quality, 9(2), 16-25.

    Calnan, M. (1988). Towards a conceptual framework of lay evaluation of health care. Social Science and Medicine, 27, 927-933.

    Campbell, S.M., Roland, M.O., & Buetow, S.A. (2000). Defining quality of care. Social Science and Medicine, 51, 1611-1625.

    Carr-Hill, R.A. (1992). The measurement of patient satisfaction. Journal of Public Health Medicine, 14, 236-249.

    Carson, P.P., Carson, K.D., & Roe, C.W. (1998). Toward understanding the patient's perception of quality. Health Care Supervisor, 16(3), 36-42.

    Covinsky, K.E., Rosenthal, G.E., Chren, M.M., Justice, A.C., Fortinsky, R.H., Palmer, R.M., et al. (1998). The relation between health status changes and patient satisfaction in older hospitalized medical patients. Journal of General Internal Medicine, 13, 223-229.

    Dean, H. (1997). Multiple instruments for measuring quality of life. In M. Frank-Stromborg & S.J. Olsen (Eds.), Instruments for clinical health-care research (2nd ed., pp. 135-148). Sudbury, MA: Jones and Bartlett.

    Dix, S.P., & Geller, R.B. (2000). High-dose chemotherapy with autologous stem cell rescue in the outpatient setting. Oncology, 14, 171-185.

    Fielding, R., Hedley, A., Cheang, J., & Lee, A. (1997). Methods of surveying patients' satisfaction. Patients' satisfaction is based firmly on their expectations. BMJ, 314, 227.

    Foss, C. (2002). Gender bias in nursing care? Gender-related differences in patient satisfaction with the quality of nursing care. Scandinavian Journal of Caring Sciences, 16, 19-26.

    Hart, M. (1996). Incorporating outpatient perceptions into definitions of quality. Journal of Advanced Nursing, 24, 1234-1240.

    Hogan, B. (2000). Patient satisfaction: Expectations and experiences of nursing care. Contemporary Nurse, 9, 275-283.

    Howland-Gradman, J., & Broderick, S. (2002). Soar to excellence with rapid feedback and rapid response. Nursing Management, 33(2), 43, 45.

    Huston, C.J. (1999). Outcomes measurement in healthcare. New imperatives for professional nursing practice. Nursing Case Management, 4, 188-195.

    Jennings, B.M., Staggers, N., & Brosch, L.R. (1999). A classification scheme for outcome indicators. Image: Journal of Nursing Scholarship, 31, 381-388.

    John, L.D. (2001). Quality of life in patients receiving radiation therapy for non-small cell lung cancer. Oncology Nursing Forum, 28, 807-813.

    Kaldenberg, D.O. (2001). Patient satisfaction and health status. Health Marketing Quarterly, 18, 81-101.

    Kane, R.L., Maciejewski, M., & Finch, M. (1997). The relationship of patient satisfaction with care and clinical outcomes. Medical Care, 35, 714-730.

    King, C.R., Haberman, M., Berry, D.L., Bush, N., Butler, L., Dow, K.H., et al. (1997). Quality of life and the cancer experience: The state-of-the-knowledge. Oncology Nursing Forum 24, 27-41.

    Kirsner, R.S., & Federman, D.G. (1997). Patient satisfaction. Quality of care from the patients' perspective. Archives of Dermatology, 133, 1427-1431.

    Kravitz, R. (1998). Patient satisfaction with health care: Critical outcome or trivial pursuit? Journal of General Internal Medicine, 13, 280-282.

    Kyle, R.A. (2001). Management of patients with multiple myeloma: Emphasizing the role of high-dose therapy. Clinical Lymphoma, 2, 21-28.

    Lawrence, C.C., Gilbert, C.J., & Peters, W.P. (1996). Evaluation of symptom distress in a bone marrow transplant outpatient environment. Annals of Pharmacotherapy, 30, 941-945.

    Lin, C. (1996). Patient satisfaction with nursing care as an outcome variable: Dilemmas for nursing evaluation researchers. Journal of Professional Nursing, 12, 207-216.

    Linder-Pelz, S.U. (1982). Toward a theory of patient satisfaction. Social Science and Medicine, 16, 577-582.

    Lynn, M.R., & McMillen, B.J. (1999). Do nurses know what patients think is important in nursing care? Journal of Nursing Care Quality, 13(5), 65-74.

    Lynn, M.R., & Moore, K. (1997). Relationship between traditional quality indicators and perceptions of care. Seminars for Nurse Managers, 5, 187-193.

    Mahon, P.Y. (1996). An analysis of the concept ‘patient satisfaction’ as it relates to contemporary nursing care. Journal of Advanced Nursing, 24, 1241-1248.

    McQuellon, R.P., Russell, G.B., Cella, D.F., Craven, B.L., Brady, M., Bonomi, A., et al. (1997). Quality of life measurement in bone marrow transplantation: Development of the Functional Assessment of Cancer Therapy-Bone Marrow Transplant (FACT-BMT) scale. Bone Marrow Transplantation, 19, 357-368.

    Meisenberg, B.R., Ferran, K., Hollenbach, K., Brehm, T., Jollon, J., & Piro, L.D. (1998). Reduced charges and costs associated with outpatient autologous stem cell transplantation. Bone Marrow Transplantation, 21, 927-932.

    Oermann, M.H., Dillon, S.L., & Templin, T. (2000). Indicators of quality of care in clinics: Patients' perspectives. Journal of Healthcare Quality, 22(6), 9-11.

    Padilla, G.V., & Frank-Stromborg, M. (1997). Single instruments for measuring quality of life. In M. Frank-Stromborg & S.J. Olsen (Eds.), Instruments for clinical health-care research (2nd ed., pp. 114-134). Sudbury, MA: Jones and Bartlett.

    Portney, L.G., & Watkins, M.P. (1993). Foundations of clinical research: Applications to practice. Norwalk, CT: Appleton and Lange.

    Rahmqvist, M. (2001). Patient satisfaction in relation to age, health status, and other background factors: A model for comparisons of care units. International Journal for Quality in Health Care, 13, 385-390.

    Sandelowski, M. (1986). The problem of rigor in qualitative research. Advances in Nursing Science, 8(3), 27-37.

    Sandelowski, M. (1995). Sample size in qualitative research. Research in Nursing and Health, 18, 179-183.

    Scardina, S.A. (1994). SERVQUAL: A tool for evaluating patient satisfaction with nursing care. Journal of Nursing Care Quality, 8(2), 38-46.

    Schwartzberg, L.S., Birch, R., West, W.H., Tauer, K.W., Wittlin, F., Leff, R., et al. (1998). Sequential treatment including high-dose chemotherapy with peripheral blood stem cell support in patients with high-risk stage II-III breast cancer: Outpatient administration in community cancer centers. American Journal of Clinical Oncology, 21, 523-531.

    Seropian, S., Nadkarni, R., Jillella, A.P., Salloum, E., Burtness, B., Hu, G.L., et al. (1999). Neutropenic infections in 100 patients with non-Hodgkin's lymphoma or Hodgkin's disease treated with high-dose BEAM chemotherapy and peripheral blood progenitor cell transplant: Out-patient treatment is a viable option. Bone Marrow Transplantation, 23, 599-605.

    Sitzia, J. (1999). How valid and reliable are patient satisfaction data? An analysis of 195 studies. International Journal for Quality in Health Care, 11, 319-328.

    Sitzia, J., & Wood, N. (1998). Response rate in patient satisfaction research: An analysis of 210 published studies. International Journal for Quality in Health Care, 10, 311-317.

    Stenstrup, E.Z. (1996). Review of quality of life instrumentation in the oncology population. Clinical Nurse Specialist, 10, 164-169.

    Summers, N., Dawe, U., & Stewart, D.A. (2000). A comparison of inpatient and outpatient ASCT. Bone Marrow Transplantation, 26, 389-395.

    Thi, P.L., Briancon, S., Empereur, F., & Guillemin, F. (2002). Factors determining inpatient satisfaction with care. Social Science and Medicine, 54, 493-504.

    Ward, S.E., & Gordon, D. (1994). Application of the American Pain Society quality assurance standards. Pain, 56, 299-306.

    Weaver, C.H., West, W., Schwartzberg, L., Birch, R., & Buckner, C.D. (1998). The rationale for performing autologous peripheral blood stem cell transplants in community cancer centers. Oncologist, 3, 346-353.

    Welton, R., & Parker, R. (1999). Study of the relationships of physical and mental health to patient satisfaction. Journal of Healthcare Quality, 21(6), 39-46.

    Wiechers, D.O., & Wiechers, D.K. (1996). Demonstrating quality: Clinical outcome, functional status, patient satisfaction, value, and efficiency. Clinical Rehabilitation and Physiatric Practice, 7, 167-183.