Assessment of a Structured Self-Management Support Intervention by Nurses for Patients With Incurable Cancer

Anke J.E. de Veer

Vina N. Slev

H. Roeline Pasman

Irma M. Verdonck-de Leeuw

Anneke L. Francke

Cornelia F. van Uden-Kraan

self-management, palliative care, patient activation, quality of life, eHealth
ONF 2020, 47(3), 305-317. DOI: 10.1188/20.ONF.305-317

Objectives: To gain an understanding of the perceptions of patients with incurable cancer regarding a new nurse-led self-management support intervention with an integrated eHealth application (Oncokompas) and its potential effectiveness.

Sample & Setting: 36 patients receiving support in the home setting.

Methods & Variables: A pre- and post-test mixed-methods design was used with a period of 12 weeks between the tests and qualitative interviews. Outcome measures were the perceived application of the intervention, patient satisfaction, patient activation, and quality of life.

Results: 85% of patients were satisfied with the assessment of their needs and the advice received. They valued nurses’ expertise and the assistance provided in their homes. Twenty-five percent of the patients used Oncokompas. However, no statistically significant changes in patient activation and quality of life were found.

Implications for Nursing: This intervention can be used for encouraging self-management by patients with incurable cancer. Additional refinement and tailoring is desirable. Offering the intervention as early in the palliative phase as possible is recommended.

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