Preferences of Individuals With Cancer for Patient-Reported Outcome Measures

Meagan S. Whisenant

Oluwatosin Bamidele

Charles Cleeland

Loretta A. Williams

patient-reported outcomes, quality of life, symptom burden, patient-centered care
ONF 2021, 48(2), 173-183. DOI: 10.1188/21.ONF.173-183

Purpose: Symptom monitoring and management using patient-reported outcome (PRO) measures improves outcomes for individuals with cancer. The purpose of the current study was to provide a qualitative assessment of preferences of individuals with cancer for PRO measures.

Participants & Setting: 15 patients receiving systemic therapy at the University of Texas MD Anderson Cancer Center.

Methodologic Approach: Participants completed three PRO measures. Qualitative interviews were conducted, and content analysis was used to identify relevant themes.

Findings: Identified themes were the importance of communicating various aspects of the disease and treatment experience to the oncology team, the importance of systematic PRO assessments, congruence among PRO questionnaires and questions clinicians ask at clinic visits, concerns about the length of PRO questionnaires, the importance of the response options available in PRO questionnaires, and willingness to complete PRO measures frequently.

Implications for Nursing: Oncology nurses are critical facilitators of the systematic use of PRO measures across the cancer care continuum.

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