Parental Decision Making Regarding the Disclosure or Nondisclosure of a Mutation-Positive BRCA1/2 Test Result to Minors
Kendra-Ann I. Seenandan-Sookdeo, RN, BN, MN; Thomas F. Hack, PhD; Michelle Lobchuk, RN, PhD; Leigh Murphy, PhD; and Sandra Marles, MD, FRCPC, FCCMG
ONF
10.1188/16.ONF.330-341
Description
Purpose/Objectives: To gain insight into parental decision making regarding the disclosure or nondisclosure of a mutation-positive BRCA1/2 test result to minors.
Research Approach: A qualitative study based on Heidegger hermeneutic phenomenology was undertaken to explore the lived experience of parental decision making regarding high-risk BRCA1/2 disclosure.
Setting: The study's recruitment site was a western Canadian hereditary breast and ovarian cancer clinic.
Participants: Fifteen female mutation-positive BRCA1/2 carriers who had at least one child aged 6–18 years.